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Title A Proposed Legal Framework for Addressing Privacy for Patient Controlled Health Records in Pediatrics
Author(s) Fabienne Bourgeois, Patrick Taylor, Kenneth Mandl
Source AMIA 2006 Symposium Proceedings, Pages 861-861
ISBN 0-9647749-0-5
Publisher American Medical Informatics Association
Publication Date 11-Nov-06
Abstract Patient controlled health records (PCHRs) provide widespread and flexible access to integrated medical information. Unique legal challenges arise where the patient is a minor. Variations in laws and statutes concerning minor’s rights to privacy and confidentiality, and institutions’ local interpretations of them, need to be integrated in the principles governing PCHRs. We propose a legal framework to guide the development of access policies for PCHRs to ensure appropriate privacy and confidentiality protection surrounding minors.


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